Baby Keegan - One of a Kind

My nam is Brock maker Keegan is my brother I will be setting up a Facebook page for. Keegan in the coming week so everyone can keep updated so please check that out any questions happy to answer

Think it's clear that the parents did this in an effort to alleviate their own emotional pain caused by strangers staring and lacking sympathy. If they appeared on television in an effort to educate others about a rare illness, they would be providing updates about his progress for any other parents that might be going through the same thing. Clearly not the goal.

could we get in touch with Keegan's parents please? (via any channel) our son also has craniosynostosis (he's 5 now) and we'd really like to exchange experiences, if they feel up to it - it would be so nice to communicate with people who know what we are going through
Patricia & Eric, Belgium

how is he today? I've seen the three parts of transforming Keegan, but it ends after the mechanism is removed from his skull, but it was in 2007, 4 years ago. I've searched Google, but it didn't find anything new