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Born in 2002, Keegan Maley has a rare condition that gives him an unusual shaped head and serious medical problems. His unique combination of symptoms mean he really is ‘one of a kind’. After coming to the end of their tether with negative public reaction to Keegan’s unusual looks, Hamilton parents Michelle and Kym Maley went public with his story in an attempt to get greater understanding. This moving doco follows Keegan as medical professionals try to get to the bottom of his life-threatening condition and work out what can be done to help him.
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Think it's clear that the parents did this in an effort to alleviate their own emotional pain caused by strangers staring and lacking sympathy. If they appeared on television in an effort to educate others about a rare illness, they would be providing updates about his progress for any other parents that might be going through the same thing. Clearly not the goal.
could we get in touch with Keegan's parents please? (via any channel) our son also has craniosynostosis (he's 5 now) and we'd really like to exchange experiences, if they feel up to it - it would be so nice to communicate with people who know what we are going through
Patricia & Eric, Belgium
how is he today? I've seen the three parts of transforming Keegan, but it ends after the mechanism is removed from his skull, but it was in 2007, 4 years ago. I've searched Google, but it didn't find anything new
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Television, 2003 (Full Length Episode)
Another Greenstone Pictures production
Finalist - Most
Outstanding Website
The ONYAs 2010 & 2011
Best Entertainment Website
Finalist – Website design
Qantas Media Awards 2009
NZ ON SCREEN 2012
This website has been made with funding from NZ ON AIR ›
Brock maley
Posted at 07.31AM - 10.08.2011
My nam is Brock maker Keegan is my brother I will be setting up a Facebook page for. Keegan in the coming week so everyone can keep updated so please check that out any questions happy to answer