Open Door - M.E.

Yes it's good to see some attention finally being paid to this debilitating condition. One very weird thing about it is that, very occasionally, you will have a good day, maybe one a month, maybe one a year. It is on that day you can be guaranteed that if you walk about, people you know will see you, and compliment you on how well you look. They will make plans for you, but you will never be well enough to go ahead with them. You actually lose more friends on that day than any other! C'est la vie!

I really enjoyed the films of ME/fibro. I have been a sufferer for about 8 years now. I Still find it hard to believe that there is not the support out there for sufferers and also carers. I am a counsellor by profession and often see clients who have ME or fibro and still to this day I get shocked by the treatment they receive from their GPS.
lisacounselling@fsmail.net is my email if anyone would like to talk or just correspond with me x

Thanks To all the people that took part in these videos, its great to watch a doctor talking freely about the real M.E and not the CFS/ME that the Simon Wesleys of the world imbed in the nations brains..M.E is not a mental illness and it isnt all in our heads...it was very refreshing for me to see these videos today.. i just wish there was more to view.. its a shame that Dr Roz Vallings, does not practice in the UK, as i would love to be one of her patients, as i am with a doctor that seems to think that filling me up with anti depressants(PROZAC) and packing me of to a Phyciastrist will solve all my problems.. my doctor will not agree to my previous doctors diagnoses and another private specialits diagnoses..
So at the moment and last 8 months i have been going through hell... These videos have given me some hope that i will find a doctor, with the undestanding that Dr Roz Vallings has and will get the help and support that i truly deserve.. Thanks again.. and good look in recovery to all the M.E sufferers in the video's... X x X

Thank you for producing this video. I have Fibromyalgia (a "cousin" of M.E.), but through my support group I have several friends with M.E..
I am particularly pleased that the video focused on the meaningful physiological research being done on M.E. - as opposed to the bogus "research" that is done by some psychiatrists who are adamant about inappropriatly forcing M.E. into the "psychiatric" category. Here in the USA, the complaint I hear most often is that medical people still think M.E. (called CFS here) is a psychiatric illness (this is partly due to our insurance laws here, which allow insurance companies to provide less coverage for "mental" than "physical" illnesses - and the insurance lobbies work hard to keep government research grants from going to solid physiological research).